Saturday, May 8, 2010

Signing Off

You probably thought that we had fallen off the end of the earth as we haven’t blogged for some time...

It has been nearly 10 months since Bryan’s accident, and five months since Bryan has been home from hospital.

There hasn’t been any more change in the feeling and movement in Bryan’s arms, torso and legs since he has come out of hospital, but he is becoming a lot stronger in the shoulders. Bryan does experience nerve pain in his feet, back and buttocks on different days, some days more bearable than others. He describes the pain as a burning feeling or hot needles being poked into him, we only hope that this is a sign of good things to come.

We’ve attended a few fundraising events in the last few months, the Race Day, Jazz concert at the Uni, Shakespeare in the Park (Empire Theatre), Golf Day. It was so good to catch up with family and friends and thank them in person for all the support they are giving us. We also attended Erin’s year 12 formal in March. She even took Bryan out on the dance floor for the father-daughter dance.

Bryan’s new push chair and power chair have arrived so he has been out and about a bit more on his own. Bryan, his brother Edward and a few friends are in the process of designing a powered go-kart which will attach to his push chair. The parts are coming from all over the world to make this unique flyan-mobile.

A couple of weeks ago Bryan had a small day surgery procedure to remove his indwelling catheter and replaced it with a suprapubic catheter which is where they put the catheter through his stomach to the bladder just above his pubic area, he has been calling it the “Free Willy “ operation.

We spent Easter and the following week camping (in a wheelchair friendly cabin) at Mudjimba Caravan Park with some of my family and friends, we had a great time and all went smoothly, so Bryan is thinking we may try and do the real camping next year, by that time I’m sure that it could be achievable. Perhaps in a caravan that is also on the drawing boards.

Most of the reno’s to the house and yard have been finished and looks great, Bryan is now able to do laps around the backyard . I’m back at school three and a half days a week, so Bryan’s carers stay until 12 o’clock on those days. Bryan is keen to get back to work at the Uni even if it is just a couple of hours a week.

This will be our last official blog for the bryanflyanflemming website. Bryan is on facebook now and will be keeping everyone updated on there. The Friends of Bryan website is still thriving and the committee is continuously updating it with events and activities, so keep watching it as well. They are also on facebook!

Well we will sign off here with some words of thanks and some pictures of the family.
Thank you to each and everyone who has followed us over the past 10 months through this journey, we send our love!

Stay in touch,
Bryan, Julie, Rebecca and Erin.




The troops hard at work in the backyard



Bryan in his new push chair


Erin's formal.

The golf day.

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